💔🙏 SHE LOST HER FIRST DAUGHTER AFTER DEVASTATING SEIZURES — NOW THIS MOM IS FIGHTING TO SAVE HER 9-MONTH-OLD BABY 🌸❤️

Look closely at these two little girls.

One is 9-month-old Kayliah.

The other is her big sister, Kalani, pH๏τographed not long before her family lost her.

For their mother, Cᴀssandra, the resemblance between their medical journeys is more than heartbreaking.

It is terrifying. 💔

In September 2023, Cᴀssandra lost Kalani after her daughter suffered multiple brain injuries during severe seizure activity.

Now, years later, Cᴀssandra is watching her baby girl experience what she says is a frighteningly similar pattern.

And she is desperately searching for answers. 🙏

Kayliah is only 9 months old, yet her family says she has been experiencing ongoing seizure activity and has been diagnosed with a condition they identify as Epilepsia Partialis Continua (EPC).

Her parents have already taken her to two different hospitals, hoping someone could explain what was happening.

But they are still searching.

According to Cᴀssandra, many of Kayliah’s tests have come back normal despite the frightening episodes her family continues to witness.

Then her most recent MRI raised additional concerns.

Cᴀssandra says Kayliah’s head continues to grow, while her brain does not appear to be developing or maturing as doctors would normally expect.

For any parent, that would be terrifying.

For Cᴀssandra, it brings back a pain she knows all too well.

She has already watched one daughter become critically ill.

She has already endured the unimaginable loss of Kalani.

And now, she is desperately trying to make sure history does not repeat itself. 😢🙏

“We have already experienced the unimaginable once. We are doing everything in our power not to experience it again.”

That is why Cᴀssandra is asking people to help spread Kayliah’s story.

Not because she wants strangers to diagnose her daughter online.

But because she hopes the story will reach the right specialist — someone experienced with EPC, complex pediatric epilepsy, or rare neurological disorders.

The family is hoping to connect with experts in areas including neurogenetic, metabolic, inflammatory, autoimmune, and other rare neurological conditions.

And they are willing to travel if it means getting closer to an answer. 🏥❤️

Somewhere, there may be a doctor who has encountered a case like Kayliah’s before.

There may be a researcher studying a rare condition that could provide a clue.

There may even be another family who has walked a similar path and knows where to turn.

One connection could make a difference. 🙏

Cᴀssandra says she couldn’t find the answers she needed in time to save Kalani.

This time, she is determined to keep searching for her baby girl.

🥺 “We just need this to reach the right person. Our daughter’s life depends on it.”

Those words explain why sharing Kayliah’s story matters.

If you know a medical professional, researcher, or specialist in pediatric epilepsy or complex neurology, please consider helping this story reach the appropriate people.

And if you’ve experienced a similar journey with your own child, your experience may help point this family toward resources or specialists through the proper medical channels. ❤️

If you don’t know anyone who can help, there is still something you can do:

Share.

You never know who might see it.

You never know who might know someone who knows someone who can help this family find the answers they desperately need. 🌎🙏

Above all, please keep little Kayliah in your prayers.

Pray that her seizures can be controlled.

Pray that doctors find answers.

Pray that the right specialist sees her case.

And pray for Cᴀssandra and her family as they face a fear no parent should ever have to endure — the possibility of losing another child. 💔🙏

Kalani’s story cannot be changed.

But Kayliah’s story is still being written. 🌈

There is still time to search.

There is still time to hope.

And there is still time to fight for this precious little girl. 🤍🙏✨