A NEW HOME, BUT WILL’S MEMORY CAME WITH THEM

According to Will’s mother, she was sitting beside her son’s grave on Monday when she received a message about an experimental treatment idea that had once been discussed during his medical journey.
At 12:41 p.m., she says she learned that an approach involving delivering a microdose of DeltaRex-G directly to the brain had reportedly been attempted in another patient only weeks after Will’s pᴀssing.

Then, at 1:08 p.m., she says another message arrived with two words that stopped her:
“It worked.”
The claim has not been independently verified, and important medical details—including the patient’s diagnosis, treatment protocol and outcome—remain unclear.

Still, the timing was enough to leave Will’s mother wrestling with painful questions.
Why wasn’t the approach pursued for Will? What information was available at the time? And could anything learned from his medical journey have contributed to later research or treatment decisions?

For a mother sitting beside her son’s grave, those questions can carry a weight that is difficult to put into words.