During a 25-week ultrasound, Queensland mother Debb Stevens learned that her unborn daughter, Daisy, had Apert syndrome, a rare genetic condition that affects the development of the skull, face, hands and feet.

Debb and her husband, Caine, had never heard of the condition before and initially had little idea what their daughter’s future might look like.

As they learned more, they discovered that Daisy would require specialized medical care and several reconstructive procedures. According to her family, she would eventually undergo more than 20 surgeries before reaching school age.

“It was very confronting and overwhelming,” Debb recalled, explaining that the family needed time to process the diagnosis and learn more about what lay ahead.

Rather than allowing fear to define their journey, Debb and Caine focused on understanding Daisy’s condition and preparing to support their daughter through each stage of her care.

A diagnosis that initially left her parents overwhelmed became the beginning of a remarkable journey of resilience, love and determination.