πŸ₯ΊπŸ’— BORN AT JUST 32 WEEKS WITH CORNELIA DE LANGE SYNDROME β€” HER JOURNEY TOWARD GREATER INDEPENDENCE

Born at justΒ 32 weeksΒ and weighing onlyΒ 1 pound 12 ounces, this little girl faced an incredibly difficult beginning.

She experiencedΒ hearing challenges and differences in her arms and hands, and was later diagnosed withΒ Cornelia de Lange syndrome, a rare genetic condition.

At onlyΒ nine months old, when she weighed around five pounds, she needed aΒ G-tubeΒ to help ensure she received enough nutrition.


As she grew,Β hearing aids and a prosthetic armΒ gave her new opportunities to communicate, interact with the world around her and become more independent.

Her journey has involved many challenges from the very beginning, but each new milestone has shown just how much possibility can come with the right support, care and determination.