A SH๏τ AT HOPE — JAZZY’S FAMILY IS STILL SEARCHING FOR EVERY POSSIBILITY
Behind Jazzy’s beautiful smile is a medical journey that her family says has continued for more than a year. As new tumors continue to appear, her loved ones say doctors no longer believe there are established curative treatment options available.
But Jazzy’s mother has not stopped searching.
She is asking whether her daughter’s case could potentially be reviewed for daraxonrasib, an investigational drug being studied in cancers involving certain RAS mutations. According to Jazzy’s mother, her daughter has an NRAS-Q61K mutation.
It is important to emphasize that daraxonrasib remains investigational and is not an established treatment for Jazzy’s neuroblastoma. Her family is simply asking doctors, researchers and the company developing the drug to review her medical history and determine whether any potential avenue might exist.
For Jazzy’s family, hope means continuing to ask questions, seeking expert opinions and exploring every possibility that doctors may consider appropriate.
Please keep Jazzy and her family in your thoughts and prayers. Send this brave little girl a message of love, strength and hope. 🕊️❤️
