BORN WITH AMNIOTIC BAND SYNDROME, DAMIEN FACED EXTRAORDINARY CHALLENGES FROM HIS FIRST DAY

What should have been the beginning of a simple family life became the start of an extraordinary journey for Anastasia and Matthew Wong when their son Damien was born with Amniotic Band Syndrome, a rare congenital condition.
The condition affected Damien before birth, leaving him facing several significant challenges from the moment he entered the world. He was born blind and with a cleft lip and palate, a deformed nose, and webbed fingers.

For his parents, those first moments brought uncertainty and fear—but also the beginning of a journey defined by love, determination and hope.
Damien’s story is a reminder that a child’s diagnosis does not define the person they can become. His family continues to cherish every milestone and celebrate the strength he has shown from the very beginning.
Born facing challenges most children never experience, Damien’s journey began with something far more powerful than a diagnosis: a family determined to stand beside him.