CYLUS STOOD TODAY — FOR THE FIRST TIME IN 3 WEEKS

CYLUS STOOD TODAY — FOR THE FIRST TIME IN 3 WEEKS
Cylus has survived battles no child should ever face — pain that could break grown adults, radiation that drained his tiny body, weeks of wires, fear, and the heartbreaking reality of being unable to stand.
And then this week… something changed.
Something his family hardly dared to hope for.
Most of the radiation has finally cleared from his body.
A victory they hold onto with everything they have.
Doctors gave him Ativan to help remove his Foley catheter — a small procedure, but one that could mean freedom after weeks of being stuck in place. He’s now on TPN to give strength to a stomach that can’t support him. And after yesterday’s terrifying scare, he has stayed stable. In this hospital, stability feels like a miracle.
But then came the moment no one expected.
Cylus asked to play.
For the first time in over a week, he reached for his Legos — carefully building semi-trucks with a quiet determination that filled the room with life again. For a little while, the monitors faded, and the hospital room felt like a playground.
And then… something even bigger.
He asked to stand.
Three long weeks had passed since pain and new lesions stole that simple act of childhood from him. Three weeks of watching his innocence slip away behind tubes and machines. But today, the pain softened. Today, he tried.
And that try — that brave, shaking, impossible try — was the exact sign doctors were waiting for. If his MIBG therapy was working, mobility would be the first thing to return. And here he was, reaching for it.
This wasn’t just progress.
It was courage made visible.
It was hope, taking shape right in front of them.
His family knows the road ahead is still long. They’re not going home yet. But today… they moved one giant, precious step closer. Because for Cylus, standing again isn’t just physical. It’s reclaiming childhood. It’s imagining life beyond tubes and chairs. It’s proof that miracles don’t always crash in — sometimes, they whisper their way back in moments like this.
And today, the world whispered a little louder.